Lifesong: Shaylynn's story

Sunday, August 22, 2010

Shaylynn's story

I wanted to share the story of a young woman, Shaylynn, that I have met through an OCF email newsletter that featured her story. Shaylynn's story is featured in the lasted edition of Denistry IQ. Please check it out here. She is inspiring in her quest to bring awareness about oral cancer.

1 comment:

shay said...: Thanks so much for posting this!!; August 23, 2010 at 10:33 AM

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My history of cancer

*SCC recurrence of tumor on right base of tongue 12/11 and probable tumor on voice box. Declined very intrusive surgery and treatments. Choosing pain management through hospice.
*SCC tumor successfully removed robotically in Birmingham from right base of tongue 5/11, quick tests done during surgery showed clean margins. Dissection of tumor after surgery showed cancers cells along bottom of tumor. Surgeon robotically removed another layer of entire area on 7/1/11, pathology report showed biopsies had clean margins with no signs of cancer remaining.
*SCC spread to far back of tongue on right side, surgery to remove what was thought to be scar tissue 3/11, pathology report confirmed SCC, further consults and tests at MD Anderson Houston to determine a plan. PET & CT scans confirm tumor on base of tongue. Doctors at MDA agree chemotherapy not effective at this point, radiation no longer an option, advised to see surgeon in B'ham for robotic surgery.
*SCC spread to neck muscle through blood stream, removed tumor 4/10, involved removing some of the muscle, 11 lymph nodes removed-all clear, will continue monthly Erbitux treatments, repeat MRI 6/10 to check BB size spot on the right side
*SCC spread to inside of right cheek, 2/09 surgery removed area with wide clean margins, replace with skin flap, veins and arteries taken from inside left forearm, attached to blood flow with veins & arteries to left side of neck with 2 negative nodes removed, monthly Erbitux treatments continued
*SCC spread to neck muscle under tip of left clavicle, 8/08 surgery, radiation and continued monthly Erbitux
*SCC spread to neck and gum area, 12/07 surgery to remove 2 lumps in neck, one classified as a dead cancer, gum area-superficial, clean margins, 8 wks Erbitux, then long range monthly Erbitux treatments
*SCC spread through blood stream to knot in neck muscle, 5/07 surgery to remove knot involved removing muscle as well, no lymph nodes tested positive, 6 wks radiation & 8 wks Erbitux
*SCC spread to gum area, 12/06 surgery removing gum area & 2 more bottom molars, superficial and clean margins, no treatments
*SCC spread to lump in neck, 7/05 surgery, one lymph node tested positive, 6 wks radiation treatments to mouth and neck
*SCC spread to gum area, 1/05 surgery removing gum & 2 bottom molars, clean margins, no treatments
*Tongue cancer-Squamous Cell Carcinoma, 4/04 surgery, clean margins, no lymph nodes tested positive, no treatments
*Breast cancer, 11/2000 lumpectomy, clean margins, no lymph nodes tested positive, 6 wks radiation treatments

Lifesong

Sunday, August 22, 2010

Shaylynn's story

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My history of cancer